Jump to content

I'm back (not that I was overly regular and probably wasn't missed ha ha)


Recommended Posts

Back on May 1st I was rushed into hospital due to having a funny turn with my brain. I was forgetting things all the time, imagining other things and had a seizure among other things.

After two months and three hospitals and an initial diagnosis of TB/Meningytis it was finally confirmed as cancer. Its a blood cancer affecting the brain (putting pressure on the brain causing issues with balance, memory and temporary gave me a new personality that took over so I dont actually remember anything that happened in the first two months). Come July I regained my personality and was able to shut the other guy down who was paranoid thinking everyone was trying to kill him and made him aggressive pulling needles out refusing medication and such like and even tried to escape resulting in sedation. All this I only know through what I have been told by friends, family and nurses.

I spent about a week co habiting with him so saw some of what he was going through (by this time he thought he was dead and going to hell) before I finally got rid of him but was still suffering with other neuro issues.

I came out in last day of July and have been having various types of chemo and other treatments since then which seem to be working as most neuro issues have subsided. I lost my bike licence due to the seizure I had in March so have just under two years as long as I have no more, til I can re-apply for my licence.

At first when I was set free, I was still having memory issues, balance issues and shaking hands etc, but now I am mostly issue free with just slight memory issues.

I tried to log on here after I came out but could not log into the message board and could not even get a recovery email sent but I was struggling to read as my eyesight was also effected as it was very fuzzy and could barely read, but now all of that stuff is gone I have finally worked out what the issue was. I registered here so long ago that I was using an email that no longer even exists.

So I have been given a 6 to 12 months potential recovery time with chemo and other treatments such as potential stem cell transplant etc, but could obviously go on longer if necessary. Unable to work due to being a danger to myself and others with the neuro issues, but with those subsiding hopefully once the cancer is in remission I will be fine to work again (cant risk it now due to low immune system from chemo which leaves me open to colds, flu, covid etc which could really set me back if I get them). Also can't use public transport or go to gigs etc right now.

So anyway back on here again to be an irregular again.

I also have a youtube channel where I explain a lot of things I am going through, to try and help people understand and to give hope to others. And thankfully I have a just giving page too as donations from friends and work colleagues etc has kept my head above water with benefits take forever and are not high enough to live on.

Edited by Captain Howdy
  • Like 5
Link to comment
Share on other sites

You were on the list Im preparing of people who vanished, be on the lookout, glad your back.

  • Like 1
Link to comment
Share on other sites

  • My Little Pony

Nope. I noticed you were gone. Just the other day one @Captain Hollycommented on a thread, and I thought maybe you had transitioned. 

But, wholly shit, dude. I can't imagine what you've been through, and currently still going through. I hope your recovery is as quick as possible. 

  • Like 1
Link to comment
Share on other sites

It's all going well, the linfected lymph nodes near the brain and spine must have been reduced in size significantly as my brain is working so much better than it was say two months or so ago. Initial treatment I had was a twice a week treatment where they injected the chemo direct into the base of the spine (not as painful for me as it is for some) and that pretty much cleared up most of the cancer that would have been in the spine, but now on two different chemo treatments we alternate, and go in for a week every 3 weeks to get them intravenously in the arm.

I actually feel a lot healthier than you would think, but its just really about making sure I don't get other infections or bugs.

I did have to be rushed into A&E a few weeks ago with what turned out to be a gastric problem, possibly caused by the gall stone I didnt know I had but during x-rays they discovered a totally separate lung infection which they dealt with quickly before it spread.

Link to comment
Share on other sites

Heres my vids so far and my just giving link, but obviously nobody is obligated to donate, just the more I share it the more options I have.

 

https://www.justgiving.com/crowdfunding/colin-brown-976

Link to comment
Share on other sites

  • 2021 Gold Donors

That sounds like an absolute nightmare for you and your loved ones mate.

Great to hear that you're emerging from that place.

Link to comment
Share on other sites

Holy shit mate, sounds horrid. Glad you're somewhere on the other side of it and all the best going forward. 

  • Like 1
Link to comment
Share on other sites

Sorry to hear about what you had to go through Captain, especially during the time when they were unable to determine the cause.  Best of luck with the ongoing treatment.  I hope it continues to make you feel better.

  • Like 1
Link to comment
Share on other sites

Thanks to everyone for the well wishes. As some have said I am certainly now closer to being fully recovered than I have ever been, and this year as a whole was probably affected by this cancer way before it was discovered as I had been off sick so much more than I have been ever in my life. Started the year on new years day with a week off with Covid, then followed the next week by a bad stomach bug. Feb I was off a week after a reaction to the first vaxx, then a week off in March due to the seizure. I think a lot of that affected me so badly as the cancer was already there.

In the last month or so I have certainly felt much healthier, although I do like sleeping more during the day but thats all part of the healing process and much needed.

Hopefully by Feb/March things will be back to relatively normal.

Link to comment
Share on other sites

Small update. A few months ago I had a biopsy on my chest with the lymph nodes, and came back as cancerous. Which is why the changed my chemo treatment.

A couple of weeks ago I had a PET CT Scan, and the results came back that I am now cancer free in my chest, so only the brain to now continue with. Really good sign.

  • Like 1
Link to comment
Share on other sites

On 11/19/2021 at 5:30 PM, Captain Howdy said:

Small update. A few months ago I had a biopsy on my chest with the lymph nodes, and came back as cancerous. Which is why the changed my chemo treatment.

A couple of weeks ago I had a PET CT Scan, and the results came back that I am now cancer free in my chest, so only the brain to now continue with. Really good sign.

Good to hear. hope things continue to improve 🙏 

  • Like 1
Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
 Share

  • 2021 HH Donation Drive

    Please support Heavy Harmonies! The donations goal is the out-of-pocket expenses to run the main site and this board for calendar year 2021.



    76% of donation goal reached.
    Donate Sidebar by DevFuse
  • Posts

    • This is what I was saying today - there's already been a handful in the last few months - didn't a handful of people get in a panic about the Cuban one? Was it Cuba? Who knows, who cares? The most blatantly obvious effect covid has had on people is that it's turned them into panic-stricken fucking morons. Is this how the rest of our lives look? We jump at every single shadow now that ever emerges from the dark? It's an absolutely pathetic way to "live."  Remember when a couple of years ago the world revolved around inspirational sayings like, "Don't let what can go wrong hold you back. Focus on what can go right." They used to word it a lot better than that, but the idea is the same. But the world's the opposite now. Flipped on it's head. A couple of cases of something we're all vaccinated against pop up somewhere and everyone spirals into a panic again? Even though the overwhelming odds are that this will be absolutely nothing again, first port of call is just full blown panic again? What a fucking world, ay.  And this is one of my greatest concerns about the whole stupid fucking thing. In NSW we are 95% vaccinated but every single case that is detected is treated as if we're in March 2020. Even with a 95% vaccination rate, how the virus is viewed and feared has not changed a single percent, in the government and media, since March 2020. And I think this is a problem. We're all vaccinated against it so why isn't it let go, like a flu or whatever else people are vaccinated against, so we can build some kind of resistance to it? Get this herd immunity thing under way? If we're not doing it now, what's the point of any of it? This is the preference, to live in stupid fear for the rest of our lives?  I don't know. I don't know anything about anything, but if we're all vaccinated and we just let the covid thing spread anywhere and everywhere, doesn't that just lessen the effect of any new strains and all this melodrama? But if we keep jumping at every single case like it's terminal cancer, how the fuck do we ever try to move on towards a life worth living?   
    • yep that's exactly what it says on the Web page. Probably takes them about a few hours of tinkering ... adding the odd name etc. not bad work for $7500 
    • It is funny and you are correct the woke police would not allow this behavior on TV or anywhere else any more. Of course who wouldn't want to lay hands on Kirstie Ally?  Those years weren't bad, but I am a bit older and these years are my favorite and equally as un PC.  
    • Well that was certainly a nice tune. Big fan of the production, that bass is rattling my fillings.
    • He has a soft spot for the cheesy promotional tracks.    
    • We didn't really get "cable" TV here until about the early 90's. I have great memories of SNL from that era. I've always followed it since then.  
    • Even if she did, I don't think I'd slide it in.
    • Does anybody remember when SNL was actually funny? I was in the 7th grade and I'd record it every week, Ive looked for a long time for many of the truly funny skits from this time, and now ive started to find some, bet they couldnt get away with this again.  
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.